Resources for Genetic Counseling & Testing for Pregnancy
Childbirth Connection's Genetic Counseling & Testing Resource
Planning Pregnancy: Genetic Counseling & Testing
In our section called The Stages of Pregnancy, we have outlined the planning of your pregnancy, each stage of pregnancy, giving birth, and the early period after birth. This link is devoted to genetic counseling and testing while planning for your pregnancy.
General Resources for Genetic Testing
March of Dimes:Genetic Counseling: provides a guide to genetic counseling
Genetics Home Reference: a guide to understanding genetic conditions
March of Dimes: Birth Defects and Genetic Conditions: comprehensive list with links to fact sheets
Kids Health for Parents: An Introduction to Genetics and Genetic Testing
Kids Health for Parents: Genetic Counseling
Resources for Family History for Awareness and Prevention During Pregnancy
U.S. Department of Health and Human Services, Office of the Surgeon General: offers a basic family medical history tree; follow
their instructions to download for free
Mayo Clinic: offers good information on how to compile your family medical history
Genetic Alliance: Family Health History: how to take your family history
Centers for Disease Control and Prevention: Public Health Genomics: using family history to promote health
Resource for Finding a Genetic
National Society of Genetic Counselors: find genetic counseling services state, city, counselor's name, institution or areas of practice or specialization
Resource for Benefits and Risks of Genetic Testing
Mayo Clinic: Genetic testing: Weigh benefits and risks: the pros and cons of genetic testing
to help you make an informed decision
Resource for When There is a Concern Due to Test Results or Family History
Genetic Alliance: Disease InfoSearch: advocacy support groups related to specific
genetic conditions, information about the clinical features of a wide number of
genetic conditions, and updates on management, treatment and more
Most recent page update: 1/14/2013
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Childbirth Connection is a national not-for-profit organization founded in 1918 as Maternity Center Association. Our mission is to improve the quality and value of maternity care through consumer engagement and health system transformation. Childbirth Connection promotes safe, effective and satisfying evidence-based maternity care and is a voice for the needs and interests of childbearing families.
News and Features
Listening to MothersSM III is the third national survey exploring women’s experiences in pregnancy and childbirth. Commissioned by Childbirth Connection, conducted by Harris Interactive, and funded by the W.K. Kellogg Foundation, the survey polled 2,400 women who gave birth in U.S. hospitals from 2011 to 2012. Results show that medically intensive experiences are typical, and evidence-based practices are underutilized. Childbearing women need better support and knowledge to navigate their maternity care.
Access the full report and supplementary materials
New Report: Maternity Care and Liability
Go to report and supporting materials
New Report: The Cost of Having a Baby in the United States
Go to report and supporting materials
New Cesarean Resources:
Go to Best Evidence Report
Go to web pages and booklet for women
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